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Blood Samples Raise Questions of Privacy: Some Samples Are Stored and Used For Research Without Parents' Consent

Date: June 30, 2009
Author: Rob Stein
QUOTE: The programs enable doctors to save lives and prevent permanent neurological damage by diagnosing and treating the conditions early. Although parents are usually informed about the tests and often can opt out if they object for religious and other reasons, many give it little thought in the rush and exhaustion of a birth. And parents are generally not asked for permission to store the samples or use them for research.

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well

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